We are campaigning for change and we want to hear from you about what issues you want us to address first.


Living by our motto 'inspired by our community' your input into the work we do is so important. We are looking at our next campaigning priorities and we want the input of the community to develop this.

We want to get your view on the important issues that we should be campaigning on. This will help our work to influence decision-makers, including the government, to try and improve care and support for people affected by Huntington’s disease. 

Take part in our survey

The survey is open for people affected by Huntington's disease, aged 18 and above. This includes people who support someone who is living with, or at risk, of Huntington's disease. The survey should take around ten minutes to complete.

Take part in the survey

You can find out more about our campaigns below.

Campaigning