Diana King
Nottinghamshire, Lincolnshire
Support in the East Midlands
We are here to support you whether you are looking for peer support or advice from a professional. Below you can find out more about our Specialist Huntington's Disease Advisers and local branch and support groups.
Specialist Huntington's Disease Advisers
Our specialist advisers are experienced and compassionate care management professionals.
They support anyone who needs their help at any stage of the Huntington’s journey. They can help people living with the disease, people at risk of inheriting the disease, family members and carers, and children or young people. They can even advise friends, neighbours, employers and your medical team.
Our Specialist Huntington’s Disease Advisers can help by:
- providing a listening ear, advice and emotional support
- delivering our confidential telephone helpline service
- coordinating support with medical, health and social care professionals
- making referrals into specialist Huntington’s disease clinics
- advocating for the person with Huntington’s disease to get the best support
- organising and attending local support networks and carers’ group meetings
- providing information resources on symptoms and how to manage them
- connecting younger family members with our Youth Engagement Service - HDYES
- giving support for sensitive end-of-life care
- educating medical, health and social care professionals
Sirumpa Waranon
Youth Worker (Derbyshire, Leicestershire, Lincolnshire, Nottinghamshire, Northamptonshire)
Branch and support groups
You can click on each branch and support group to find out more about the groups and where they meet. If you can't see one in your area and you are thinking about setting one up, please email branch@hda.org.uk and we can support you in doing this.
Derbyshire support group - Treetops
The Huntington's Disease Association Derbyshire support group is run by volunteers to provide emotional and practical support to anyone affected by Huntington's disease in the local area. It's an opportunity to connect with your local adviser and meet other families living with Huntington’s disease for peer and professional support. Light refreshments and hot drinks will be available.
Northamptonshire support group
The Huntington's Disease Association Northamptonshire support group is run by volunteers to provide emotional and practical support to anyone affected by Huntington's disease in the local area. This includes individuals with the disease, family members, friends or carers.
People need to know they are not alone and that there are others living with this. We meet on a monthly basis to bring people together in order to support each other. Empowering people to make choices, share stories and get the help and support they need.
Nottinghamshire branch
The Huntington's Disease Association Nottinghamshire branch is run by volunteers to provide emotional and practical support to anyone affected by Huntington's disease in the local area.This branch was set up over twenty years ago.
The group is open to anyone whose life has been affected by Huntington's disease. We're a sociable and friendly group who meet up regularly to provide support and friendship to each other. New members are always welcome.
North Lincolnshire support group
The Huntington's Disease Association North Lincolnshire support group was founded in 2018 and is run by volunteers to provide emotional and practical support to anyone affected by Huntington's disease in the local area. This includes individuals with the disease, family members, friends or carers.
People need to know they are not alone and that there are others living with this. We meet on a monthly basis to bring people together in order to support each other. Empowering people to make choices, share stories and get the help and support they need.
A Facebook page was also set up so people can interact and keep in touch with each other and not just at the meetings.
