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Huntington's disease community conference (28)

What is Huntington's disease?

Huntington’s disease is an illness caused by a faulty gene in your DNA (the biological ‘instructions’ you inherit which tell your cells what to do).

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What is Huntington's disease

Find support near you

Our team of Specialist Huntington's Disease Advisers are here to help you - they can provide information, advice and support on all aspects of Huntington's disease.

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Getting help

We are here to offer support and advice no matter what stage of Huntington's disease journey you are on. We support entire families, carers, healthcare professionals, employers and teachers.

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Support for young people

If you are a child or young person that has someone with Huntington’s disease in your family, this section is for you.

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Latest news

Young adult carer

A study for young adult carers

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Results on research exploring psychological self-care in people with pre-manifest Huntington's

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Neuro Plan Now

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Upcoming events

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Finding your way: What help is available for families living with Huntington's disease

8 September 2026, 2:00pm - 3:00pm

7 October 2026, 2:00pm - 3:00pm

5 November 2026, 10:00am - 11:00am

1 December 2026, 2:00pm - 3:00pm

For families and For professionals and Support and Youth engagement service and Monthly events

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Branch and support groups

Hampshire and Dorset Family Day

12 September 2026, 10:00am - 3:30pm

For families and In person and Support

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Young adults (18–40) in-person event – Birmingham

12 September 2026, 11:00am - 4:00pm

In person and Support and Youth engagement service

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Support our work

Make a donation

Your donation will help us support people living with Huntington’s disease.

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£27.85 helps support our vital telephone helpline

£11.98 could pay for five booklets to help children to learn about Huntington's disease

£67.69 allows us to provide care and support groups for families with Huntington's disease

For professionals

Training

Training

Did you know that the Huntington's Disease Association offers a range of training for professionals?

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Webinars and videos

Book on to one of our live webinars or watch any of our recorded sessions.

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Professional resources

Useful leaflets and guides to help professionals understand Huntington's disease.

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Patient journey

Understand the patient journey and at what interventions are needed at different stages of the disease.

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Events for you

Lucy and Jack - Running - Consent 2023 (3)

Run for charity - event directory

Running events

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Kelly Gordon - Walking - Consent 2022

Climb Snowdon challenge

Challenges

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Jess Webb skydive -Consent

Skydive challenge

Challenges

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