Share your experiences and help improve services: fill out #MyNeuroSurvey
Everyone deserves access to the right care, treatment and support at the right time, no matter who you are or where you live. But too often we know this isn’t the case for people with Huntington's disease.
Please share your experiences and help improve services for everyone affected by neurological conditions now.
If you are completing the survey on behalf of someone else, please take our carers’ survey – this survey explores your experiences and the experiences of the person/people you care for.
Make a real difference
The survey takes around 20 minutes to complete. It’s completely anonymous and secure. Please take part and make your voice heard. The survey is carried out by a third party, Revealing Reality, and they must keep personal information confidential by law. By taking part you will help improve treatment, services and care for everyone affected by neurological conditions.
Please complete the survey by 15 November 2024.
Who can take part
- Adults, children and young people (people under 18) with a confirmed or suspected diagnosis of a neurological condition
- People who provide support for someone with a neurological condition, including parents, guardians and carers can take part
Share your experiences
By sharing your experiences, you help build a picture of treatment, care and support for people affected by Huntington's disease and other neurological conditions throughout the UK and the Republic of Ireland.
Results from the 2021/2022 survey are being used to back our calls for a government-led Neuro Taskforce and our ongoing #BackThe1in6 campaign, calling on the government to improve workforce and services for everyone affected by neurological conditions, including Huntington's disease.
Please get in touch with our survey partners Revealing Reality on +44(0)20 7735 8040 (standard network rates apply), or email myneurosurvey@revealingreality.co.uk to:
Complete the survey over the phone if this suits you better
Request to complete the survey in a preferred language
Get in touch with the Neurological Alliance (England) by calling +44(0) 1923 882 590 (standard network rates apply) and leaving a voicemail, or emailing survey@neural.org.uk to request a paper copy.
Tell everyone you know about #MyNeuroSurvey – forward this email or share on social media. Alternatively, if you feel able, record a short video on your phone saying why you’re taking part in #MyNeuroSurvey. Email us at comms@hda.org.uk and we’ll share it on social media.