Continence challenges
discussing some of the issues that people with Huntington's disease might have around going to the toilet and look at some things that might help.
In this section we look at topics such as communication, seating, sleeping and eating. These webinars are hosted by specialist Occupational Therapists.
Medication and Huntington's disease
The information shared in the webinar is not intended to be a substitute for professional medical advice and you should consult relevant medical professionals for individual advice. Rachel Taylor Consultant Nurse and Clinical Lead and Stefania Bruno, Consultant Neuropsychiatrist discuss different types of medication.
Looking after oral hygiene
Mari will be talking us through an overview of good oral hygiene practices and the products that are available. We will also take a look at what the healthy oral cavity should look like and when you should seek further advice.
Gastrostomy tube (PEG feeding)
This webinar will help you to understand about gastrostomy tubes and decision making around this topic.
Acceptance and commitment therapy
Dr Sarah Gunn, Clinical Psychologist and Researcher in Huntington's disease for a webinar on Acceptance and Commitment Therapy (ACT). Sarah explains what ACT is and why it can be beneficial for people affected by Huntington's disease.
Bring on the cake
Neurological dietitian, Ciara Mackie, from Milton Keynes University Hospital will run through the best diet for those with Huntington's, dietary changes you can make at home and options for the future if eating becomes difficult.
Sleep routine and management
Occupational Therapist Alex Fisher and Kirsty Page talk about sleep routine and management
Seating and posture
Occupational Therapists, Alex Fisher and Kirsty Page talk about seating postures and recommended equipment.
Eating and drinking
Occupational Therapists, Alex Fisher and Kirsty Page covers eating and drinking in Huntington's disease.
Manual handling, equipment and funding
Occupational Therapists, Alex Fisher and Kirsty Page gives information on manual handling, equipment and how these are funded.
Oral health and Huntington's disease
"Graham Manley, Head of Dental Department and Consultant Dental Surgeon at the Royal Hospital for Neuro-disability, speaks about the prevention of oral health care issues and how specific treatment techniques can be of benefit to people with Huntington's disease. "
Psychology and Huntington's disease
In this webinar, Maria and Jane speak about the role psychology can play for people at risk of Huntington's disease and those who have the gene.
Communication and Swallowing
Kathryn Dooley, Speech and Language Therapist from the Neuro Community Team in Wrightington, Wigan and Leigh NHS Foundation Trust gives a basic overview of 'Speech and Language Therapy' and discuss communication, speech and swallowing.
Apathy in Huntington's disease
See our animation all about apathy; what it is and ways to handle it.
