Ian
Ian is from West Midlands and is our youth worker covering Central England and North Wales. If you've met Ian then no doubt you would have met his beautiful cat, Belle who attends most of his online meetings. Ian previously worked as a college lecturer teaching performing arts, media studies, hairdressing, and a variety of functional skills and life skills subjects, to students with supported learning needs. He also worked as an Independent Mental Health Advocate (IMHA) supporting the rights of those detained under section in hospital and community settings.
Ian’s family has been affected by Huntington’s disease for three generations and he was a family carer for his mum and aunt from the end of his teenage years into his 30s. While being a carer he was fortunate enough to be able to juggle caring responsibilities by working sporadically in film and television as a supporting artist and actor, moving later into modelling, commercials, and body doubling for the leading actors.
I started at the Huntington’s Disease Association in 2023 when the Youth Engagement Service expanded. I love this role as sharing my experience and knowledge can help people to understand more about Huntington’s disease and build a sense of community for children, young people and their families, so that they do not feel isolated as they navigate their Huntington’s journey.