Helpline
Merseyside, Isle of Man
Support in the North West of England
We are here to support you whether you are looking for peer support or advice from a professional. Below you can find out more about our Specialist Huntington's Disease Advisers and local branch and support groups.
Specialist Huntington's Disease Advisers
Our specialist advisers are experienced and compassionate care management professionals.
They support anyone who needs their help at any stage of the Huntington’s journey. They can help people living with the disease, people at risk of inheriting the disease, family members and carers, and children or young people. They can even advise friends, neighbours, employers and your medical team.
Our Specialist Huntington’s Disease Advisers can help by:
- providing a listening ear, advice and emotional support
- delivering our confidential telephone helpline service
- communicating with medical, health and social care professionals
- working with specialist Huntington’s disease clinics
- advocating for the person with Huntington’s disease to get the best support
- organising and attending local support networks and carers’ group meetings
- providing information resources on symptoms and how to manage them
- connecting younger family members with our Youth Engagement Service - HDYES
- giving support for sensitive end-of-life care
- educating medical, health and social care professionals
Branch and support groups
You can click on each branch and support group to find out more about the groups and where they meet. If you can't see one in your area and you are thinking about setting one up, please email branch@hda.org.uk and we can support you in doing this.
Manchester support group
The Huntington's Disease Association Manchester support group is run by volunteers to provide emotional and practical support to anyone affected by Huntington's disease in the local area. This includes individuals with the disease, family members, friends or carers.
The aim is to provide local families affected by Huntington's with a cuppa, chat and company. Everyone sits and chats about what is happening to them at the moment knowing that the others there know exactly what they are going through.
Visit our Greater Manchester and Chester Facebook page
Where we meet
Adswood Lodge
60 Adswood Lane West,
Stockport
SK3 8HZ
When we meet
We aim to vary the days and times we meet as a group, please see below for our upcoming group dates:
Saturday 21 June between 2pm - 4pm
Saturday 16 August between 2pm - 4pm
Wednesday 15 October between 7pm - 8:30pm
Thursday 04 December between 7pm - 8:30pm
Key contact
Clare Braithwaite, Support Group Leader
Specialist Huntington's Disease Adviser
Debra Robinson
01477 534434
debra.robinson@hda.org.uk
Merseyside branch
All of our branch meetings are informal and provide a relaxed environment for people to talk if they wish. On occasion, we have health care professionals giving talks on many topics relating to Huntington's disease, and the local Specialist Huntington's Disease Adviser, Anita Daly also attends meetings when she can.
When we meet
We meet the last Wednesday of the month except in August and December between 7:30pm - 10.00pm at Kavanagh Place.
Kavanagh Place
1 Rumney Road
Kirkdale
L4 1UB
Key contact
Chair: Christine Clarke
Secretary: Shelagh Lucking
Treasurer: George Thorman
Specialist Huntington's Disease Adviser
Please contact branch@hda.org.ukPreston support group
The Preston Support Group have been together since 2009. We are there to support each other and offer advice. We meet regularly and outside speakers attend to provide free expert advice and information. People attend as and when they want or as and when they can.
We have seasonal themes; i.e. Easter and Christmas quizzes, cream tea in June and social events outside the meetings. Please come and join us for a brew and a chat and do not hesitate to contact us if you would like any further information.
Where we meet
Crystal Hall Care Home
Whittingham Hospital Grounds,
Whittingham,
Preston,
PR3 2JE
When we meet
We meet every two months on the first Monday of the month between 6.00pm – 8.00pm.
- Monday 7 July
- Monday 1 September
- Monday 3 November
Key Contact
Support Group Leader – Alison Ashton
prestonhdagroup@gmail.com
Specialist Huntington's Disease Adviser
Theresa Westhead
01942 864 645
theresa.westhead@hda.org.uk
