Disability benefits reform
Campaigning
Support not struggle: Helping people with Huntington's disease have a better experience of the benefits system.
People living with Huntington’s disease often have a poor experience of the benefits system. We’re pushing for this to change.
What needs to improve?
The previous government consulted on proposals to make changes to Personal Independence Payments (PIP). The purpose of PIP is to provide non-means-tested cash payments to disabled people and people with health conditions to help them live independent lives.
Some of our key concerns and recommendations are:
- The PIP assessment process does not meet the needs of people living with Huntington’s disease.
- People with a diagnosis of Huntington’s disease should receive PIP on an ongoing basis.
- Most people with Huntington’s disease have evidence of their diagnosis and would benefit from there being a greater emphasis on condition during the assessment process.
- Replacing a cash transfer with an alternative system will make the lives of people living with Huntington’s disease more difficult.
- All Huntington’s patients, family members and carers should be provided with coordinated, multidisciplinary team care.
Cost of living resource hub
We have put together information about the cost of living increase including resources that will help you find more information and additional support.
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How you can get involved
Join us and help campaign for better support for people affected by Huntington’s disease. When you sign up to be a campaigner, you'll be the first to hear about campaigns the Huntington’s Disease Association is planning and ways you can get involved. Please tick the campaign box below when you fill out the form.
