Huntington's in Mind
Striving for better mental health support
Mental health services are difficult to access for people living with Huntington’s and often offer poor care. We’re determined to change this.
Together we will build a better life for people affected by Huntington's disease.
We fight for all people with Huntington’s disease to have the best possible healthcare and the right support from the benefits system. An important part of this work is influencing people. We influence through campaigning.
Below are our three main campaigning priorities. Further down the page you can visit each campaign page, find out what we have done so far, what we have planned, and any ways that you can get involved.
Support not struggle
Helping people with Huntington's disease have a better experience of the benefits system
People living with Huntington’s disease often have a poor experience of the benefits system. We’re pushing for this to change.
Strengthening care
Improving health and social care for people with Huntington's disease
People living with Huntington’s disease are often faced with health professionals who don’t understand their condition and how to help. We’re providing training and developing guidelines for health professionals on how to offer effective support.
Guided by our community
Our campaigning topics have been guided by our community. In 2024 we put out a survey to find out what changes you wanted to see so that we could focus our campaigning on the things that matter to you.
You can read more about this below.
Campaign priorities for Huntington’s disease: Guided by you
Campaigning
Our campaigning so far
Strength in numbers
#NeuroChampion - Neurological Alliance's paliamentary campaign
Awareness, Campaigning
The UK Neuro Forum is being established following the #BackThe1in6 campaign
Awareness, Campaigning
How you can get involved
Join us and help campaign for better support for people affected by Huntington’s disease. When you sign up to be a campaigner, you'll be the first to hear about campaigns the Huntington’s Disease Association is planning and ways you can get involved. Please tick the campaign box below when you fill out the form.
