Host a pop-up event
This awareness month our volunteers are hosting events across England and Wales in their local area to raise awareness. If you are interested in holding one in your area you can find out more and register your event below.
This year's theme is Behind the Gene.
The invisible challenges and untold stories of Huntington’s disease.
This May, we are showing the many faces and many lives behind Huntington's disease.
Too often, people affected by Huntington's disease find themselves educating the public and healthcare professionals about their condition. This month, we will be sharing what the Huntington's community wish people knew.
How can you get involved?
Download our press release templates
Local press love real stories and this is a great way to help raise awareness. We have created templates to share your story or event this May.
Use our social frames and graphics
You can raise awareness on your social media channels by using our profile picture frame or one of our image overlays. Click get your frames, swipe left to view the designs and upload your image which will sit behind it..
Get sharing
- Share this page - with people who do not know about Huntington's disease
- Share your story - submit your story for our 'Behind the Gene' page, or write to your local press using our template
- Share your photo - use our awareness month overlay on your pictures with your story
Educating professionals
We are looking for people to take our Huntington's disease factsheets into their local GP, hospitals, care homes or any healthcare setting where there is the opportunity to raise awareness and encourage training around Huntington's disease.
Please fill out the form below.
Please note that these will be delivered towards the end of April / start of May.
Host a pop-up awareness event
The pop-up events could be held in a local pub, community centre, sports club, gym, work lobby, supermarket, church or event space in England and Wales.
We will provide you with a pop-up event pack which will include: Huntington's factsheets, banners, balloons, stickers, badges for the hosts, donation boxes and a t-shirt if required. We will also provide safe and legal guidance and photo consent forms.
We hope as many of you as possible can get involved, as it would be amazing to create a buzz across the country, in public, for this year's awareness month. Events will be shared on this page so that our community can attend any local to them.
If using a venue or public space, you must have permission to host your event before registering.
If you cannot get a date in May but would still like to host an event, you can still take part and receive a pack.
Read the challenges and stories from the Huntington's community
What we do
We support adults and families
We support children and young people
