Helpline:

0151 331 5444

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Help and support

Care

What is Huntington's disease?

Huntington’s disease is an illness caused by a faulty gene in your DNA (the biological ‘instructions’ you inherit which tell your cells what to do).

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Find support near you

Our team of Specialist Huntington's Disease Advisers are here to help you - they can provide information, advice and support on all aspects of Huntington's disease.

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Getting help

We are here to offer support and advice no matter what stage of Huntington's disease journey you are on. We support entire families, carers, healthcare professionals, employers and teachers.

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Support for young people

If you are a child or young person that has someone with Huntington’s disease in your family, this section is for you.

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Latest news

Drug annoucement

Sage Therapeutics announce they have stopped development of a drug

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Mental health campaigning

Unseen and Unheard - Mental Health in Huntington's disease

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Lifeline

The total raised from the BBC Lifeline Appeal

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Upcoming events

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Huntington's disease family day - Hertfordshire

23 November 2024, 10:30am - 3:30pm

For families and In person

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HDYO

Who are Huntington's Disease Youth Organization (HDYO) and what do they do?

25 November 2024, 7:00pm - 8:00pm

For families and Youth engagement service and Support

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Finding your way with Huntington's disease

4 December 2024, 2:00pm - 3:00pm

For families and For professionals and Youth engagement service and Monthly events

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Support our work

Make a donation

Your donation will help us support people living with Huntington’s disease.

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£27.85 helps support our vital telephone helpline

£11.98 could pay for five booklets to help children to learn about Huntington's disease

£67.69 allows us to provide care and support groups for families with Huntington's disease

For professionals

Training

Training

Did you know that the Huntington's Disease Association offers a range of training for professionals?

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Webinars and videos

Book on to one of our live webinars or watch any of our recorded sessions.

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Professional resources

Useful leaflets and guides to help professionals understand Huntington's disease.

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Patient journey

Understand the patient journey and at what interventions are needed at different stages of the disease.

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Events for you

Lucy and Jack - Running - Consent 2023 (3)

Run for charity - event directory

Running events

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Kelly Gordon - Walking - Consent 2022

Climb Snowdon challenge

Challenges

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Jess Webb skydive -Consent

Skydive challenge

Challenges

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