Young Adults

HDA Support

The HDA has a dedicated youth worker who runs the HDA Youth Engagement Service (HDYES), this is available for any young person aged 11-22 living in a family affected by HD. For more information contact Adam by email at

HDA Information

The HDA produce a factsheet for young adults available from our factsheets page.

More information for young adults is available on the youth section of our website.

Huntington’s Disease Youth Organisation (HDYO)


HDYO provides information, education and support for young people impacted by Huntington’s Disease. It was created by, and is run by young people with HD in the family.

Get Connected


Get Connected is a free, confidential helpline service for young people under 25 who need help, but don’t know where to turn

Scottish Huntington’s Disease Association


Scottish HDA resources for young adults

Young Minds


A charity which aims to improve the emotional well-being and mental health of children and young people under 25.

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