Worldwide HD associations, organisations and support groups

Map of worldwide associations

List of worldwide associations

Region Name Details Location Youth Services
Argentina Asociacion Para el Apoyo a los Enfermos de Huntington (APAEH) Direccion Concepcion Arenal 2478-2P. “B”
Ciudad Autonoma de Buenos aires – Argentina
Presidente: Cristina del Carmen Straziuso
Tel: Celular 5411-155-647 9442
Tel: 5411-4855-3887
Email: info@huntingtonargentina.com.ar
Website: www.huntingtonargentina.com.ar
-63.61667199999999,-38.416097
Argentina Contact Dr. Frederico Micheli
Hospital De Clinicas José De San Martin
Programa de Parkinson y Movimientos Anormales
Av.Cordoba 2351 9 piso
Ciudad Autonoma de Buenos Aires (C1120AAR)
Tel: 5950-9027
Email: huntington@hospitaldeclinicas.uba.com.ar

Dr. Marcello Merello
Fleni Movement Disorders
Montaneses 2325, 1428 Buenos Aires, Argentina
Tel:54-11-4788 3444; fax: 54-11-4784 7620; tel home: 54-11-4393 5806
Email: mmerello@fleni.org.ar

Dr Guillermo Zeppa
Neurology Service, Hospital Privado De Cordoba
Naciiones Unidas 346, 5016 Cordoba, Argentina
Tel: 54-351-468 8216; fax: 54-351-468 8272; Tel home: 54-351-481 7404
Email: gzeppa@radar.com.ar

Dr Emilia Mabel Gatto
Instituto De Neurociencias De Buenos Aires
Guardia Vieja 4435 Ciudad Autonoma De Buenos Aires
Argentina
Tel: 54-11-4867 7705/54-11-4781 8660; fax: 54-11-5371 3494, tel home: 54-11-4785 3097
Email: emiliagatto@fibertel.com.ar
ga_mem@yahoo.com

Dr Oscar S. Gershanik
Director Extrapyramidal Diseases Sec.
Fundacion Favaloro – Dpto Neurociencias
Av Belgrano 1746, (C1093AAS) 1221 BUENOS AIRES, ARGENTINA
Tel: 54-11-4378 12200/1300/1400
Email: gersh@movi.com.ar

Dr Manuel Fernandez Pardal
Hospital Britanico De Buenos Aires
Pedriel 74 Ciudad Autonoma de Buenos Aires
Tel: 00-54-11-4304 1081
Email: mferpardal@hotmail.com
Website: hospitalbritanico.org.ar

-58.3815591,-34.6036844
Australia Australian Huntington’s Disease Association (National) Contact: The National Secretary, Ms Robyn Kapp
Email: robyn.kapp@huntingtonsnsw.org.au
133.775136,-25.274398
Australia South Australia and Northern Territory HD Association www.huntingtonssant.org.au 136.2091547,-30.0002315
Australia Victoria HD Association www.huntingtonsvic.org.au 144.7851531,-37.4713077
Australia Western Australia HD Association www.huntingtonswa.org.au 121.6283098,-27.6728168
Australia New South Wales HD Association www.huntingtonsnsw.org.au 151.2092955,-33.8688197
Australia Queensland HD Association www.huntingtonsqld.org.au 142.7027956,-20.9175738
Austria Östereichische Huntington Hilfe Mr Kurt Zwettler
Sibeliusstrasze 9/3/35, 1100 Vienna, Austria
tel: 43-1-6150 265
Hotline: 0676-730 3794
Email: shg-huntington-wien@gmx.at
Website: www.huntington.at
14.550072,47.516231
Austria Huntington Hilfe Linz Ernst Aigner
4501 Neuhofen/Krems
43-664-450 5982
Email: ernst.aigner@ing-aigner.at
14.28583,48.30694
Austria Huntington Hilfe Graz University Clinic of Psychiatry Karl Franzens
Auenburgerplatz 22, 8036 Graz, Austria
Tel: 43-316-358-7120/6221
Fax: 43-316-3853 5561
Email medniki@gmx.at
15.439504,47.070714
Austria Huntington Hilfe Tirol Mrs Andrea Aichrainer
Ranggerweg 8/11
6170 Zirl
Tel: 43-650-555 6175
Email: hht@gmx.at
Website: www.huntington-hilfe-tirol.at
11.601487,47.2537414
Austria Huntington Hilfe Kärnten Mrs Gerda Jaritz
Mühlenweg 43/10
9500 Villach
Tel: 43-650-391 4524
And Mrs Christine Guggenberger
Tel: 43-650-542 7217
Email: christina.guggenberger@infincon.com / c1guggen@edu.uni-klu.ac.at
14.1805881,46.722203
Austria Huntington Hilfe Vorarlberg Mrs Andrea Amann
Moosmahdstr 4, 6850 Dornbirn
Mobil: 43-664 466 9308
Tel/fax: 43-5572 263 74
Email: club-antenne@utanet.at
9.9797373,47.2497427
Austria Huntington Hilfe Salzburg Mr Bernhard Gantschnigg
Wasserfall 5 , 4866 Unterach am Attersee
Tel: 43-66-423 8013; Fax: 43-7665 60090
Email: office@huntington-hilfe-salzburg.at
Website: www.huntington-hilfe-salzburg.at
13.05501,47.80949
Belgium Flanders Huntington Liga Mrs Beatrice De Schepper
Spelonckvaart 30
9180 Moerbeke-Waas, Belgium
Tel: 32 – 9 – 346 8991
Email: bea@eurohuntington.org

Social Service
Krijkelberg 1, B 3360 Bierbeek, Belgium

tel: 32 - 16 452 759
Email: socialedienst@huntingtonliga.be
Website: www.huntingtonliga.be

3.9616724,51.182676
Belgium Wallonia Ligue Huntington Francophone Belge 4bis Montagne Ste Walburge, 4000 Liege, Belgium
tel: 32 - 4 - 225 8733; Mob: 32-4-92 849 400
Email: info@huntington.be
secretariat.lhfb@skynet.be
Website: www.huntington.be
4.8719854,50.4673883
Brasil ABH - Associacao Brasil Huntington Rua Conde de Sao Joaquim, 179 - Bela Vista - CEP 01320-010
Sao Paulo, Brasil
Tel: 55-11-3280-2248
Email: abh@abh.org.br
Website: www.abh.org.br
-46.63330939999999,-23.5505199
Bulgaria Bulgarian Huntington Association Ms Constantine Economides
Tel: 359-886 390 679
Email: info@huntington.bg
Website: http://huntington.bg
Facebook: https://www.facebook.com/huntington.bg
25.48583,42.733883
Bulgaria Contact Mrs Nataliya Elenkova Grigorova
Krasno selo 198 Floor 6 Flat 23
Sofia 1618, Bulgaria
Tel: 0000359 886 390679
Email: natalia.grigorova@abv.bg
23.3218675,42.6977082
Canada Huntington Society Of Canada 151 Frederickstreet, Suite 400, N2h 2m2 Kitchener, Ontario, Canada
tel: 1 - 519 749 7063, fax: 1 - 519 - 749 8965;
Email: info@huntingtonsociety.ca
Website: www.huntingtonsociety.ca
-106.346771,56.130366
Canada Société Huntington Du Quebec 2300 Boulevard René Lévesque O
Montréal, Quebec, H3h 2r5
tel: 514 – 282 4272; Fax: 1-514-937 0082
Email: shq@huntingtonqc.org
Website: www.huntingtonqc.org
-73.567256,45.5016889
Canada Be JHD/HD aware! JHD/HD news and information from around the world! I post from at least 25 different countries from around the globe!
Website: www.facebook.com/groups/274610862746628/
-80.24816659999999,43.5448048
Chile Agrupacion Chilena de Huntington La Ramada 11694, Las Condes
Santiago, Chile
Tel: 56-9-8429 1291
Tel cel: 9-873 3703
Email executive director Elisabeth Roth: Elisabeth@huntington.cl
President: Rodrigo@huntington.cl
Website: www.huntington.cl
-71.542969,-35.675147
Chile Contact Dr Marcelo Miranda
Dept of Neurology
Clinicas Las Condes
Lo Fontecilla
Santiago, Chile
Email: marcelomiranda@gmail.com
Tel: 5622-6108-247

Dr Carlos Juri
Departamento Neurologia Escuela de Medicina UC
Marcoleta 350 2e piso
Santiago - Chile
Tel: (02) 2354 6887
Email: cajuri@gemail.com

Dr Pedro Chana
Cetram
Belisario Prats 1597
Santiago – Chile
Tel: (02) 2732 1927
Email: psasso@cetram.org

-70.6692655,-33.4488897
China - Hong Kong Contact Ken To
Room 1314, Lung Chu House
Lung Poon Court
Diamond Hill
Kowloon, Hong Kong
Tel: 852 – 9707 1405
Email: kensantoso@gmail.com
114.109497,22.396428
Colombia Asociacion Colombianos por la Enfermedad de Huntington (acolpEH) Mrs Janeth Mosquera
Cel : 57-310-5599 155
Email : acolpeh@gmail.com
acolpEH@colombianosporlaenfermedaddehuntington.org
Website : www.acolpeh.wix.com
Colombianosporlaenfermedaddehuntington.org
Colombianosporlaenfermedaddehuntington.org/ingles/
-76.5319854,3.4516467
Colombia Fundacion Huntington de Colombia Calle 45 No 50-59 of 101
Bogota DC, Colombia
Tel: 571-2225596
Fax: 571-221 8339
Email: fuhcol@gmail.com
Website: www.fuhcol.blogspot.com
-74.072092,4.710988599999999
Cuba Contact Grupo Multidisciplinario Para La Atención A Pacientes Y Familiares Con Diagnóstico De Enfermedad De Huntington
Jefa Departamento Neurogenetica
Instituto De Neurologia Y Neurocirurgia
Dr. Tatiana Zaldivar Vaillant
Calle 29 Esq D.Vedado. Plaza De La Revolucion
Havana City CP10400 CUBA
tel: 537-8330165
Email: tzv@infomed.sld.cu
-77.781167,21.521757
Cyprus Huntington Disease Association of Cyprus President: Dr George Papantoniou
Email: hdacyprus@outlook.com
Address: 89, Arch. Makarios III Avenue 3020, Limassol, Cyprus
Website: www.hda.com.cy
Czech Republic Spolecnost pro pomoc pri Huntingtonove chorobe Velke Namesti 37
500 03 Hradec Kralove
Czech Republic

Tel. +420 723 349 327
Email:; info@huntington.cz / funds@huntington.cz
Website: www.huntington.cz

Chairman: PharmDr. Zdenka Vondrackova
E-mail: Zdenka.Vondrackova@seznam.cz

15.472962,49.81749199999999
Denmark Landsforeningen Huntington Sygdom Bystaevneparken 23,, 701; DK-2700 Bronshoj, Denmark
Tel: 45-5320 7850
Email: kontor@huntingtons.dk
lhs@huntingtons.dk
Website: www.huntingtons.dk
9.501785,56.26392
Ecuador Contact Mrs Maria Cristina Guerra Villacreses
Mindo, Ecuador
Tel: 593-2 2170075; Mobile: 08-551 2091
Email: c.g.villacreses@gmail.com
-78.18340599999999,-1.831239
England & Wales Huntington’s Disease Association Suite 24 Liverpool Science Park
Innovation Centre 1
131 Mount Pleasant
L3 5TF Liverpool
Tel: 44-151-331 5444; Fax: 44 – 151-331 5441
United Kingdom
Email: info@hda.org.uk
Website: http://www.hda.org.uk
-1.1743197,52.3555177
Egypt Contact Mr Hany Farid Haleem
6 Omraniastreet – Omrania
GIZA 12211 – CAIRO, Egypt
Tel: 202-3-571 1379
Cellphone: 20212 3972744
Email: hanyfarid612@yahoo.com

Dr Bahaa Demian Grace
Kasr Alaini College of Medicine
21 Mourad Street; apt 11Giza
Cairo, Egypt
Tel: 202-35724344
Mobile: 20 12/3455662
Emergency: 20126734075
Email: drbahaademian@yahoo.com

Website: www.geocities.com/hdegypt

30.802498,26.820553
Finland Finnish Parkinson’s Disease Association, Huntington Disease Branch Rehabilitation Centre Suvituuli
Suvilinnantie 2, Postbox 905, 20100 Turku, Finland
tel: 358-2-274 0412/358-2-5274 0421; fax: 358-2-2740 444
Email: arja.pasila@parkinson.fi
Website: www.parkinson.fi
22.2239273,60.38922459999999
Finland Suomen
Huntington Yhdistys ry
c/o Suomen Parkinsson-liitto ry
Suvilinnantie 2
PL 905
20101 Turku
Finland
E-mail: info@huntington.fi
Website: www.huntington.fi
Facebook: www.facebook.com/huntingtonfi
22.2666303,60.4518126
France Association Huntington France 42, 44 Rue Du Chateau Des Rentiers, 75013 Paris, France
Tel: 33 1 - 5360 0879; Fax: 33 - 1- 5360 0899
Email: huntingtonfrance@wanadoo.fr
Website: http://huntington.fr
2.3522219,48.856614
France Association Huntington Avenir 5 rue Milton Friedman
ZI Montbertrand
38230 Charvieu Chavagneux, France
Tel: 33-4-7832 0285; Fax: 33-4-3742 5015
Email: contact@huntingtonavenir.net

mgarcia@huntingtonavenir.net
Website: www.huntingtonavenir.net
5.161867,45.7462329
France Association Huntington Mont-Blanc 333 Rue Pellissier – 74700 Sallanches, France
Tel: 06-3652 1085
Email: Huntington.mont.blanc@gmail.com
6.630556899999999,45.936661
France Huntington Espoir Grand-Est Siege: 30 Rue de líris – 68150 Ribeauville, France
Secretariat: 5 Rue de la Chaumiere – 21240 Talant,
Tel/fax: 03-8055 5748; Tel: 03-6979 0122
Emails: Sylvie.castella@huntington.asso.fr
Sylvie.carbonnell@huntington.asso.fr
Website: www.huntington.asso.fr
7.319090999999999,48.194668
Germany Deutsche Huntington Hilfe E.V. Geschaefts- Und Beratungsstelle

Falkstrasse 73-77, D 47058
Duisburg, Germany
tel: 49 - 203 - 22915, fax: 49 - 203 - 22925,
Email: dhh@dhh-ev.de
Website: www.dhh-ev.de
www.selbsthilfenetz.de
10.451526,51.165691
Greece Organisation Of Huntington In Greece Mrs Lydia Veremi
Hydras 13; 176-76 Athens, Greece
Tel: 1-951 8054; Mobile: 6973517827 or 6946161285
Email: myopas@otenet.gr
lveremi@yahoo.gr
21.824312,39.074208
Hungary Contact Department Of Neurology, University Of Szeged
Prof Laszlo Vecsei
Semmelweis Str 6, H6725 Szeged
Tel: +36-62-545351; Fax: +36-62-545 597
Email: vecsei@nepsy.szote.u-szeged.hu
19.503304,47.162494
India Huntington’s Organization P2-59 Dlf Qutub Enclave Phase Ii, Gurgaon-122002 Haryana, India
tel :91-124-4019072, Cell 91-991-0029072 fax: 91 - 124 - 351 945
Email: navnitsingh11@yahoo.com
78.96288,20.593684
Iran Contact Mrs Farahnaz Noormohammadi
Shahrara Street
Mojtama Nastran Block D 54
Tehran –Iran
Tel: 0912-401-9421
Email: noor1340@yahoo.com
53.688046,32.427908
Ireland Huntington Disease Association Of Ireland Carmichael Centre, North Brunswickstreet, Dublin 7, Ireland
tel: 353 - 1 872 1303,
Email: info@huntingtons.ie
Website: www.huntingtons.ie
-6.2603097,53.3498053
Israel Israeli HD Association Dr. Nira Dangoor
3 LUBEZKY ST, GEDERA 7042004, ISRAEL
tel: 972 - 8 - 859 8573, fax: 972-8-8598573 , Cell 0528384889
Email: niradn@012.net.il
Website: www.huntington.org.il
34.851612,31.046051
Italy Associazione Italiana Corea Di Huntington-Milano Piazzale Veronica Gambara 7/9
20146 Milano
Tel: 39-02-407 5165; Cell: 345 49 87 911
Email: segretaria@aichmilano.it
Website: www.aichmilano.it
9.1859243,45.4654219
Italy Associazione Italiana Corea Di Huntington-Roma Onlus Via Nomentana 56, 00161 Roma, Italy
Tel: 39-06-44242033/39-06-44252298; Fax: 39-06-44242033
Email: info@aichroma.com ;
paolazinzi@yahoo.com
wanda.danzi@aichroma.com
Website: www.aichroma.com
Website: www.newshd.net
14.2681244,40.8517746
Italy Associazione Corea Di Huntington - Napoli Policlinio Federico Ii, Clinica Neurologica - Ed17
Via Pansini 5, 80131 Napoli, Italy
tel: 39-081-5455 213/39-338-8008 372; fax: 39-081-7462 693
Email: aichnit@yahoo.it
Website: via Orphanet
12.4963655,41.9027835
Italy Contact Seconda Universita Degli Studi di Napoli-Azienda Ospedalira Universitaria
Policlinico Federico II, I Clinica Neurologica
Centro di Referimento per le Malattie Neurologische Rare
Isola 8, Edificio 10 Via Sergio Pansini
80131 Napoli, Italy
Tel: +39-0815666810 / +39-0815666809
Fax: +39-0815666809
Email: marina.melone@unina2.it
Website: www.regionecampania.it
www.orphanet-italia.it
www.napoli5.neurodoc.it
14.9213643,41.0581568
Italy Lega Italiana Ricerca Huntington E Malattia Correlate Onlus Business Office: Via Dei Mille 41/A ; 00185 Rome, Italy
Tel:39-06-4470 2460 / 800 388 330 (free for Italy only)
Email : info@lirh.it
Website : www.lirh.it
14.1930918,41.5891555
Italy Associazione Italiana Huntington Emilia Romagna – Aiher Mr Antonio Fontana
Via Romea n 1140, 47522 Cesena, Italy
Email : info@aiher.it; segreteria@aiher.it; presidenza@aiher.it ; antofnt@gmail.com
Tel : 39-0547-335935 ; 39-335-380195
Website : www.aiher.it
12.2464292,44.1396438
Japan Japanese Huntington’s Disease Network C/O Department of Public Policy
4-6-1 Shirokanedai
Minato-ku, Tokyo 108-8639 Japan
Tel/Fax: 81 – 3 – 6409 -2079
Email : jhdn@mbd.nifty.com
Website: www.jhdn.org
138.252924,36.204824
Lithuania Huntingtono Ligos Asociacija Mrs Dr Zivile Navikiene
22 Zemuogiu Street,
Kulautuva Village
Kaunas Region LT 53093
Tel mob: +37-0686 35487
Email: hdasociacija@gmail.com
Website: http://www.hla.lt/
Facebook: https://facebook.com/huntingtonasociacija
23.881275,55.169438
Malta Huntington Support Group Malta Mrs Margaret Parnis England (act as contact person)
4 Lion Street, Floriana, MALTA G.C.
tel: 356 9949 3267;
Email: pengland@onvol.net
14.375416,35.937496
Mexico Asociacion Mexicana De La Enfermedad De Huntington I.A.P. Tesorelos 97, Toriello Guerra Del. Tlalpan, 14050 Mexico City, Mexico
tel: 52 - 5424 3325; fax: 52 - 5424 3189
Email: asocia@prodigy.net.mx
Website: www.huntingtonmexico.org
-102.552784,23.634501
Netherlands Vereniging Van Huntington Zuid Hollandlaan 7, 2596 AL Den Haag, Netherlands
tel: 31 - 70 - 314 8888 ;
Email: info@huntington.nl
Website: www.huntington.nl
5.291265999999999,52.132633
New Zealand Huntington’s Disease Association (Auckland) New Zealand Neurological Support Centre
7a Taylors Road
Morningside, Auckland
or
PO Box 16181
Sandringham, Auckland, New Zealand
Tel: 09-815 9704 / mobile: 027-432 8255
Email; huntingtonsakld@xtra.co.nz; jane.hda@xtra.co.nz
Website: www.huntingtons.org.nz / www.hdauckland.org.nz
174.7633315,-36.8484597
New Zealand Huntington’s Disease Association (Christchurch) New Zealand Chirstchurch Community House
141 Hereford Street
Christchurch, New Zealand
Tel: 3-312 5612
Email: ddc2@clear.net.nz
172.6362254,-43.5320544
New Zealand Huntington’s Disease Association (Wellington) New Zealand Postbox 30420
Lower Hutt 5040, New Zealand
Tel: 4-569 3252 / mobile 021-344 445
Email: jwigginswellingtonhda@hotmail.com
Info.Wellingtonhda@xtra.co.nz
174.776236,-41.2864603
Northern Ireland Huntington’s Disease Association Of Northern Ireland 53 Andersonstown Road
Belfast
BT11 9AG
Northern Ireland
Tel: 44 – 79 82843907
Email: info@hdani.org.uk or sorcha@hdani.org.uk
Website: www.hdani.org.uk
-6.4923145,54.7877149
Norway Landsforeningen For Huntington’s Sykdom Grimsvollen 29, 4616 Kristiansand, Norway

tel: 47 – 902 - 02031, 934-47-795/9020204
Email: leder@huntington.no
Website: www.huntington.no
8.468945999999999,60.47202399999999
Oman Oman Huntington Disease Association Oman’s Huntington Association
P.O.Box 1331 Postal Code 111
Sultanate of Oman
Tel: 968-9289 6363
Email: info@hdom.org
Website: www.hdom.org
55.975413,21.4735329
Pakistan Huntington Disease Care & Cure Society of Pakistan 2 Sawati Gate, Peshawar Cantt, Pakistan
tel: 92 - 91 – 528 7855
Email: hdccs@brain.net.pk
69.34511599999999,30.375321
Peru Huntington Society Of Peru Mrs Maria Begazo Viza
Arequipa, Peru
Tel: 51-54-245 982; Fax: 51-54-211 1712
Email: mbegazo8@LatinMail.com
-75.015152,-9.189967
Peru Contact Dr Miriam Velez
Prolongacion
265 Cusco 265, 32 San Miguel, Lima, Peru
Tel: 51-1-328 0504; tel/fax home: 51-1-263 5571
Email: miriamev@yahoo.com
-71.53745099999999,-16.4090474
Poland Polskie Stowarzyszenie Choroby Huntingtona Rekodzielnicza 17a, 02-267 Warsaw, Poland
Tel: 48-22-8464151
Email: kontakt@huntington.pl / d.lis@huntington.pl
Email chairman everywhere: d.lis@dana.com.pl
Website: www.huntington.pl
Mrs Dr Dorota Hoffman-Zacharska /
Email: dhoffman@poczta.wp.pl
19.145136,51.919438
Portugal Associacao Portuguesa De Doentes De Huntington (APDH) Dr Filipa Julio
IBILI – Azinhaga de Sta.Comba
3000-354 Coimbra, Portugal
Tel: 351-96-252 3161
Email: huntington.coimbra@hotmail.com
Website: www.huntington-portugal.com

Mrs Ursula Kleibrink
Rua Dr. Afonso Costa 32L
8500-016 Alvor-Portimao
Tel: 00-351-282459331; Mbl: 927 176 955
Email: Huntington.portimao@gmail.com

Enfermeira Helena Soares
Praca. Antonio Baiao 7, loja A
1500-567 Lisboa, Portugal
Tel/fax: 00-351-21-770 0014
Email: Huntington@sapo.pt

-8.224454,39.39987199999999
Romania Huntington Association Romania Mrs Ramona Moldovan
Tel: 0040 – 722 163 425
Email: ramonamoldovan@gmail.com
24.96676,45.943161
Russia Huntington Association Of Russia Dr Sergey A. Klyushnikov
Inst Of Neurology, Dept Of Neurogenetics, Russian Academy Of Medical Sciences
Volokolamskoye Shosse 80, 125367 Moscow, Russia
tel: 7 - 95 490 2221, fax: 7 - 95 - 490 2210
Email: sergeklyush@gmail.com
105.318756,61.52401
Scotland Scottish Huntington’s Association Business First
Linwood Point, Paisley, PA1 2FB
Tel: +44 141 848 0308
Email: sha-admin@hdscotland.org
Website: www.hdscotland.org
-4.2026458,56.49067119999999
Serbia Mr Zoran Simonovic Mr Zoran Simonovic
Psihosocijalni savetnik
Blagoja Parovica BB
37000 Krusevac, Srbija,
Serbia
Tel:+38137410217;fax: +38137410103;mob:+38162209006
Email: zoran.simonovic@gmail.com
21.005859,44.016521
Slovakia Spolecnost Pre Pomoc Pri Huntingtonovej Chorobe V Slovenskej Republike Mrs Jana Pavlikova
Klokocova 737, 98101 Hnust´a
Slovakia
Tel: 0475-423856; 09-15800155
Email : jana.pavlikova@pmxmail.sk
Website : www.sphch.sk
19.699024,48.669026
Slovenia Huntington Association Of Slovenia VRHOVCEVA 13d, LOG PRI BREZOVICI 1358, SLOVENIA
Tel: 386-1-7566020; mobile: 386-40397289
Fax: 386-1-5603086
Email: ako9@siol.com
jan.kobal@kclj.si
14.995463,46.151241
South Africa Huntington’s Association Of South Africa (HASA) 219 Johannesstreet, Fairland,2170 South Africa
Tel: 27-11-476 6189; Mbl 1: 27-83 383 1188; Mbl 2: 27-83 555 7757
Email: michaelh@tsdworld.co.za
Website: www.huntingtons.org.za / www.saida.org.za

Cape Town Support Group:
Tel: 082-318 3330
Email: jessica_selfe@yahoo.co.uk
Website: www.huntingtons.org.za

Johannesburg support Group
Tel: 083-304 0671
Email: ungerer777@gmail.com

18.4240553,-33.9248685
South Korea Contact Dr. Manho Kim
Dept Of Neurology, Seoul National University Hospital
101 Daehakro, CHONGNOKU
Seoul 110-744, South Korea
Tel: 82-2-2072 2193; fax: 82-2-3672 7553
Email: kimmanho@snu.ac.kr

Mr Wooseok In
Dept Of Neurology, Seoul National University Hospital
101 Daehakro, Chongnoku
Seoul 110-744, South Korea
Tel: 82-2-2072 1735; fax: 82-2-7625178
Email: spon13@gmail.com
Website: www.huntington.co.kr

127.766922,35.907757
Spain Asociacion De Corea De Huntington Espanola Calle Mercedes Rodriguez 16 Local
28044 Madrid
España
Telefono: 671 43 93 33 Mrs Ana Amposta – Neuropsicologa
Email: ache-consultas@hotmail.com
Website: www.e-huntington.es
-3.7037902,40.4167754
Spain Asociación Jóvenes Huntington Calle Cervera 77, 4º derecha, 28033 - Madrid
Tel: +34 689463417
Email: jovenesEH@yahoo.es
Facebook: https://tinyurl.com/ajhuntington
-2.5698138,40.6614665
Surinam Contact Mr. Dick Ijskes
Pobox 871
Paramaribo, Surinam
Tel: 597-464036; Celulair: 597-8818681
Email: d.yskes@sr.net
-56.027783,3.919305
Sweden Riksfarbundet Huntingtons Sjukdom (RHS) Email: susanne.zell@huntington.se
Website: www.huntington.se
18.643501,60.12816100000001
Sweden Huntington Foreningen I Sverige C/o NHR
Postbox 490 84
100 28 Stockholm. Sweden
Tel: 46 – 8 – 677 7010
Email: info@neuroforbundet.se
Website: www.neuroforbundet.se
13.003822,55.604981
Switzerland Schweizerische Huntington Vereinigung Association Huntington-Suisse (AHS)
Swiss Huntington’s Association
Feldguetliweg 75
8706 Feldmeilen, Switzerland
Tel: 41-79 – 627 3324
Email: info@shv.ch
Website: www.shv.ch
www.huntington.ch
8.227511999999999,46.818188
Turkey Turkish Huntington Society Prof A. Nazli Basak
Bogazici University, Dept Of Molecular Biology & Genetics
80815 Bebek - Istanbul, Turkey
tel: + 90 - 212 – 359 6679; fax: + 90 - 212 – 3597298
Email: basak@boun.edu.tr
Website: www.alsturkiye.org
35.243322,38.963745
United States of America Huntington’s Disease Society Of America 505 Eight Avenue, Suite 902, NEW YORK NY 10018, USA
tel: 1 - 212 242 1968, fax: 1 - 212 - 239 3430
Email: lvetter@hdsa.org
hdsainfo@hdsa.org
Website: http://www.hdsa.org
-95.712891,37.09024
Uruguay Contact Mrs Montserrat Martinez
Yaro 1038, Ap 2, Cp 11200 Montevideo, Uruguay
Tel: 5982-409 8234; Fax: 5982-401 3918
Email: montsemora1954@yahoo.com ; lamonse@adinet.com.uy
-55.765835,-32.522779
Venezuela Asociacion Venezolana De Huntington Mrs Aleska Gonzalez De Zambrano
Av Principal de Colinas de Bello Monte
Calle Voltaire, Edificio-Palpoc, piso4, Apt 41, Parroquia el Recreo
1050 D.C. Caracas, Venezuela
Tel: +58-212-7517 654; Fax: +58-261 5011
Email: avehun@hotmail.com
Website: http://avehun-venezuela.webnode.com.ve
-66.58973,6.42375
Venezuela Contact Dr Roberto Weiser
Hospital Universitario De Caracas
Postbox 80207, 1080 Caracas, Venezuela
tel: 58 - 2 - 991 5731; fax: 58 -2 - 979 0453
Email: rweiser@cantv.net
-66.90360629999999,10.4805937
Yugoslavia Contact Prof Vladimir S. Kostic
Inst Of Neurology Ccs
Ul.Dr Subotica 6
11000 Belgrade, Yugoslavia
Tel: 381-11-685 596; Fax: 381-11-684 577
Email: kostic@imi.bg.ac.yu
4.283494,52.09381
Zimbabwe Contact Mr. Manu Prajapati
13/23 Rd Ave, Famona Bulawayo, Zimbabwe
Tel: 263-9-64470; Fax: 263-9-883067
Email: unampraja@ymail.com
29.154857,-19.015438
Other countries Contact Gerrit R. Dommerholt
Callunahof 8, 7217 St Harfsen, Netherlands
tel: 31 - 573 - 431595
Email: iha@huntington-assoc.com
Organisations Hereditary Disease Foundation 3960 Broadway, 6th floor. New York – NY 10032, USA
Tel: 212-928 2121
Email: cures@hdfoundation.org
Website: http://www.hdfoundation.org
Organisations International Huntington Association (IHA) Office Manager
Gerrit R. Dommerholt
Callunahof 8, 7217 St Harfsen, Netherlands
tel: 31 - 573 – 431595
Email: iha@huntington-assoc.com
Website: www.huntington-assoc.com
Organisations Alliance Of Genetic Support Groups 35 Wisconsin Circle, Suite 440, Chevy Chase, Md 20815-7015, Usa
tel: 1 - 301 - 652 5553
Email: alliance@capaccess.org
Website: www.geneticalliance.org
Organisations We Move Worldwide Education And Awareness For Movement Disorders
One Gustave L.Levy Place, Box 1052, New York, Ny 10029, Usa
tel: 1 - 212 - 241 8567
Email: wemove@wemove.org
Website: www.movementdisorders.org
Organisations EFNA European Federation of Neurological Associations
Rue D’Egmont 11
1000 Brussels – Belgium
Tel: 00-353-8798 30816
Email: executivedirector@afna.net
Website: www.efna.net
Organisations Eurordis European Organization For Rare Disorders
102 Rue Didot, 75014 PARIS, FRANCE
tel: 33 - 1 - 4416 2747; fax: 33 - 1 - 4416 2712
Email: eurordis@eurordis.org
Website: www.eurordis.org
Organisations European Huntington Association Mrs Bea DeScherpper
Spelonckvaart 30
9180 Moerbeke-Waas, Belgium
Tel: 32-16-452 759
Email: bea@eurohuntington.org
Website: www.eurohuntington.org
Organisations Euro-HD Network Tel: +49-731-500 50951
Email: info@euro-hd.net
Website: www.euro-hd.net
Organisations World Federation of Neurology Research Group on Huntington Disease Prof R.A.C.Roos
Email: r.a.c.roos.neurology@lumc.nl
Website: www.wfneurology.org
Organisations Huntington Study Group Tel: +1-310-450 9913
Email: hsgwebmaster@ctcc.rochester.edu
Website: www.huntington-study-group.org
Organisations The Huntington Project Tel: +1-585-273 4147
Email: leslie.briner@ctcc.rochester.edu
Website: www.huntingtonproject.org
Organisations Huntington Disease Drug Works www.hddrugworks.org
Organisations Huntington Disease Lighthouse www.hdlighthouse.org
www.hdlf.org
Organisations Huntington Disease Advocacy Center www.hdac.org
Organisations HD Free with PGD www.hdfreewithpgd.com
Organisations Huntington Disease Youth Organization (HDYO) www.hdyo.org
info@hdyo.org
Organisations HDBuzz www.hdbuzz.net
Organisations Red Latinoamericana de Huntington Website: www.rlha.net
Rodrigo Osorio: rosorio@rlah.net
Taise Cadore: tcadore@rlah.net / taise@abh.org.br
Organisations European Federation of Neurological Societies www.efna.net
Organisations CHDI www.chdifoundation.org
Organisations IHA Board President: Ms Asuncion Martinez
Email: asun@euro-hd.net

Vice president: Ms Bev Heim-Myers
Email: bheimmyers@huntingtonsociety.ca

Secretary: Ms Ann Jones
Email: annjones@aapt.net.au

Treasurer: Ms Danuta Lis
Email: d.lis@huntington.pl

International Development Officer: Ms Bea De Schepper
Email: bea.deschepper@skynet.be / bea@eurohuntington.org

Members at Large:

Ms Louise Vetter
Email: lvetter@hdsa.org

Ms Filipa Julio
Email: Huntington.coimbra@ hotmail.com

Ms Zivile Navikiene
Email: hdasociacija@gmail. Com

Office manager: Mr Gerrit Dommerholt
Email: iha@huntington-assoc.com

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