HDA Support

The HDA has a dedicated youth worker who runs the HDA Youth Engagement Service (HDYES), this is available for any young person aged 11-22 living in a family affected by HD. For more information contact Adam by email at

HDA Information

The HDA produce a factsheet for teenagers available from our factsheets page.

A booklet is available for younger teens via our shop at £13.50 (Huntington’s Disease and Me – A Guide for Young People).

More information for teenagers is available on the teens section of our website.

Huntington’s Disease Youth Organisation (HDYO)


HDYO provides information, education and support for young people impacted by Huntington’s Disease. It was created by, and is run by young people with HD in the family.

Scottish Huntington’s Disease Association


Scottish HDA resources for teens

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