Resources

Parenting

HDA Information

The HDA produce a factsheet ‘Talking to Children about Huntington’s Disease’ available from our factsheets page.

The HDA has a parents' section on our website.

Disability Pregnancy and Parenthood International (DPPi)

Web: disabledparent.org.uk Tel: 0800 018 4730

Promotes the networking of information and experience relating to pregnancy and parenthood for disabled people through a quarterly international journal and its UK based information service.

Family Lives

Web: familylives.org.uk Tel: 0808 800 2222

Offer a helpline for parents providing information, advice, guidance and support on any aspect of parenting and family life.

HOPES

Web: hopes.stanford.edu

Information on talking to children about HD.

Young Minds Parent Helpline

Web: www.youngminds.org.uk

Provides advice and information to any adult concerned about a child or young persons emotional problems and behavior, up to the age of 25.

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