Resources

HD websites

HDA Support

The HDA has a team of Specialist HD Advisers who provide advice to families, carers, friends and professionals in relation to Huntington’s Disease.

There are a range of branches and support groups across England and Wales.

For advice from other people with HD or who are linked to HD a message board is available.

Huntington’s Disease Lighthouse Families

Web: www.hdlf.org

The mission of the HDLighthouse Families Web site is to present and explain the latest research findings so that families afflicted by Huntington’s disease can become proactive in their care, have hope for the future, and make good decisions in the present.

HOPES: Huntington’s Outreach Project for Education, at Stanford

Web: hopes.stanford.edu

HOPES is a team of faculty and undergraduate students at Stanford University dedicated to making scientific information about Huntington’s disease (HD) more readily accessible to the public

Huntington’s Disease Drug Works

Web: hddrugworks.org

The focus is providing information on present treatment options for Huntington’s disease

Huntington’s Disease Youth Organisation (HDYO)

Web: hdyo.org

HDYO provides information, education and support for young people impacted by Huntington’s Disease. It was created by, and is run by young people with HD in the family.

The Effects of HD

Web: ruledomain.com

A personal account on the HDAC website

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