HDA Information

The HDA produce a factsheet ‘Predictive testing for HD’, this includes a list of genetic centres and is available from our factsheets page.

Genetic Alliance UK

Tel: 0207 704 3141

A national alliance of patient organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders.



EuroGenGuide was a project producting information about genetic testing, counseling and research across Europe. Their leaflets are aimed at patients, their families and professionals.

NHS Genetics Education


The NHS Genetics Education and Development Centre works to integrate genetics into the education of NHS professionals.

Jeans for Genes


Jeans for Genes raises money through an annual Jeans for Genes Day, this money is given in grants to different charities working with people with genetic disorders.

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