Resources

Genetics

HDA Information

The HDA produce a factsheet ‘Predictive testing for HD’, this includes a list of genetic centres and is available from our factsheets page.

Genetic Alliance UK

Web: www.geneticalliance.org.uk
Tel: 0207 704 3141

A national alliance of patient organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders.

EuroGenGuide

Web: geneticalliance.org.uk/projects

EuroGenGuide was a project producting information about genetic testing, counseling and research across Europe. Their leaflets are aimed at patients, their families and professionals.

NHS Genetics Education

Web: www.geneticseducation.nhs.uk

The NHS Genetics Education and Development Centre works to integrate genetics into the education of NHS professionals.

Jeans for Genes

Web: www.jeansforgenes.com

Jeans for Genes raises money through an annual Jeans for Genes Day, this money is given in grants to different charities working with people with genetic disorders.

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