HDA Support

The HDA has a team of Specialist HD Advisers who provide advice to families, carers, friends and professionals in relation to Huntington’s Disease.

There are a range of branches and support groups across England and Wales.

For advice from other people with HD or who are linked to HD a message board is available.

HDA Information

The HDA produce a factsheet ‘Huntington’s Disease: A Carers Guide’ available from our factsheets page.

Carers Direct

Web: Tel: 0300 123 1053

A guide to Social Care by the NHS. Offers advice on:

  • Finding Care and Support
  • Information on Social Care
  • Care and Work or Study
  • Care, finance and the law
  • Carers Wellbeing
  • Young Carers

You can call the Carers Direct helpline for confidential information and advice on: 0300 123 1053 (9am-8pm Mon-Fri amd 11-4 at weekends).

Carers Trust


Carers support works to improve support, services and recognition for unpaid carers. They provide access to respite breaks, information and advice, education, training and employment opportunities.

Crossroads Care and the Princess Royal Trust for Carers have merged to form the Carers Trust.

Carers Trust has a specific website for young carers:

Carers UK

Web: Tel: 0808 808 7777

Exists for all individuals that act as carers, for disabled, elderly or frail people. It offers advice and information on all aspects of caring, to both carers and professionals.

Directgov: Carers


Government information for carers.

UK Home Care Association

Web: Tel: 020 8288 5291

The UK home care association can give details of home care providers who follow their code of practice. They also produce a leaflet ‘choosing care in your home’.

Young Carers


An on-line support service for young people aged 18 and under in the UK, who look after someone in their family who has an illness, disability, drug/alcohol addiction or mental health condition.

Include Programme-Young Carers Services

Web: Young Carers Map

Shows a map of young carers projects around the UK

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