Resources

Advice

HDA Support

The HDA has a team of Specialist HD Advisers who provide advice to families, carers, friends and professionals in relation to Huntington’s Disease.

There are a range of branches and support groups across England and Wales.

For advice from other people with HD or who are linked to HD a message board is available.

Gov.uk

Web: www.gov.uk

A government website which provides information on government service and information. The Disabled People section has information on:

  • Carers
  • Benefits & Financial help
  • Work & Disabled People
  • Disability Equipment and Transport
  • The Equality Act
  • Disability Rights

CareAware

Web: www.careaware.co.uk Tel: 0161 707 1107

CareAware is an advisory and advocacy service specialising in elderly care funding advice in the UK.

Citizens Advice Bureau

Web: www.citizensadvice.org.uk

The Citizens Advice Bureau service helps people resolve their debt, benefits, housing, legal, discrimination, employment, immigration, consumer and other problems and is available to everyone. Advice is available face-to-face and by telephone. Most bureau offer home visits and some also provide email advice.

Independent Age

Web: www.independentage.org Tel: 0800 319 6789

Provide:

  • Advice and Information (expertise on social care, benefits and other social support)
  • Befriending and Support (Have a network of trained volunteers providing face-to-face and telephone befriending to help alleviate loneliness and isolation)

They support people who are over state retirement age but if you are younger and think you could benefit from their services they are still happy for you to contact them.

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