Books available from the HDA

Stranger on the Shore

Stranger on the Shore

by John Symons

Special Offer, only £10 when ordered from the HDA - the full value of all sales to go to the Huntington’s Disease Association

Each person affected by Huntington’s disease knows the impact on the whole family, those ‘at risk’ as well as those who develop the disease. “Stranger on the Shore” tells how it changed the lives of a Cornish family over a century or more.

The book, normally on sale for £13.95 is now available to members and supporters of the HDA for the special price of £10. All money from sales will be received by the HDA.

This book was warmly reviewed by Professor Heather Skirton, who is well known to many HDA members and supporters.

Huntington's Disease: The Facts

HD: The Facts

Updated for 2008. Written by Dr Oliver Quarrell, Consultant in Clinical Genetics

  • The first “popular” guide to Huntington's disease.
  • Provides information for patients, their families and friends.
  • Recognises the importance of the genetic breakthrough in the identification of the responsible gene, and advises on counselling.
  • Addresses the important issues that those carrying the gene have to face.
  • Concise and accessible, with a minimum of medical jargon.

Contents

  • Facts & figures about Huntington's disease
  • The physical aspects of Huntington's disease
  • Mood changes and emotional aspects
  • The genetics of Huntington's disease
  • Genetic counselling
  • Changes in the brain
  • What causes the nerve cells to die
  • Ideas for effective treatment of Huntington's disease
  • Lay organisations (with contact details)

HDA special offer

Published by Oxford University Press, “Huntington's Disease: The Facts ” is available in the bookshops for £11.99. The Huntington's Disease Association is selling the book at a discounted price of £10.00 including UK postage and package.

Hurry Up and Wait! A Cognitive Care Companion -

Hurry Up and Wait!

Huntington's Disease in the Middle and More Advanced Years

Published 2008. Written by Jimmy Pollard

“Hurry Up and Wait!” is available to order directly from the website http://www.lulu.com/content/2517713 for £9.67.

Alternatively, it can be ordered from our UK Head Office at the cost of £12.50 including UK post and package.

Learning to Live with Huntington's Disease, One Family's Story

Learning to Live with Huntington's Disease

Written by Sandy Sulaiman

All author royalties from sales of the book will be donated by Sandy to the Huntington's Disease Association.

“Learning to Live With Huntington's Disease: One Family's Story”, is available from:

  • all good bookshops
  • www.amazon.co.uk
  • our Head Office at the cost of £13.99 including UK postage and package.

The Selfish Pig's Guide to Caring

The Selfish Pig's Guide to Caring

Written by Hugh Marriott

A book for the six million people in the UK who provide unpaid care for disabled or elderly relatives or neighbours. Author Hugh Marriott brings into the open everything he wished he'd been told when he first became a carer. The book is thought-provoking, informative and brutally frank - but also funny and moving.

“The Selfish Pig's Guide to Caring” is published by Little, Brown Book Group Limited, Brettenham House, Lancaster Place, London WC2E 7EN.

This book is also available from our UK Head Office at the cost of £9.95 including UK postage and package.

Huntington's and Me - A Guide for Young People

Huntington's and Me

Written by Alison Gray, the author of “Genes and Generations”

“Huntington's and Me - A Guide for Young People” is full of information, thoughts, feelings and strategies for coping.

“You have nothing to lose but fear. Fear is a lack of understanding. Get the knowledge. As young people, we need discussion, love, understanding, and most importantly, support…”

“Huntington's and Me - A Guide for Young People” is published by the Huntington's Disease Association, Wellington, New Zealand and is available from our UK Head Office at the cost of £5.00 including UK postage and package.

Huntington's Disease - A Nursing Guide

Huntington's Disease - A Nursing Guide

Written by Steve Smith

Published by Fern House and is available from our UK Head Office at the cost of £5.00 including UK postage and package.

Curse in Verse

Curse in Verse

Written by Trish Dainton

A book of verse available from our UK Head Office at the cost of £5 plus £1 UK postage and package per copy.

How to order

Simply telephone Head Office on 0151 331 5444 or download our Order Form then print out, complete, and send with an enclosed cheque to the HDA.

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