Resources

Palliative care

Compassion in Dying

Web: www.compassionindying.org.uk
Tel: 0800 999 2434

Supporting your choices at the end of life.

Hospice Information

Hospice Information is a joint venture between St. Christopher's Hospice and Help the Hospices. It brings together the experience and established reputation for high quality of the Hospice Information Service at St. Christopher's and the national remit and innovative information developments of Help the Hospices. Includes 'find a hospice' / palliative care service.

NHS End of Life Care Programme (EoLC)

Web: www.endoflifecare.nhs.uk/eolc

The NHS End of life Care Programme (EoLC) was set up to improve care at the end of life for all wherever they live. This site aims to support the programme by sharing good practice, resources and information.

The Gold Standards Framework (GSF)

Web: www.goldstandardsframework.nhs.uk

The GSF is a systematic evidence based approach to optimising the care for patients nearing the end of life in the community. It is concerned with helping people to live well until the end of life and includes care in the final year of life for people with any end stage illness.

Liverpool Care Pathway for the Dying Patient (LCP)

Web: www.mcpcil.org.uk/liverpoolcarepathway

The LCP Framework is a continuous quality improvement framework for care of the dying irrespective of diagnosis or place of death.

Preferred Priorities for Care (PPC)

Web: www.ppcdocument.com

The PPC is intended to be a patient-held record that will follow the patient through their path of care into the variety of differing health and social care settings. Guidance reference sheets for both the patient and carer and staff are available explaining the use of the PPC.

The Open University

Web: http://openlearn.open.ac.uk

The Open University Learning Space gives free access to course materials from the Open University. Among other topics the 'health and lifestyle' unit offers the following:

Ageing and Disability: Transitions into residential care
Living with death and dying
Palliative Initiatives in Neurological Care (The PINC Project)

Web: www.suerydercare.org

Sue Ryder Care have piloted three nationally recognised end of life Care Tools - Gold Standards Framework in Care Homes, Integrated Care of the Dying Pathway and Preferred Place of Care (now Preferred Priorities for Care). The outcomes will be published at the end of June and will be available on the Sue Ryder Care website.