Resources: Children

HDYO

Huntington's Disease Youth Organisation

Contact a Family

Web: www.cafamily.org.uk
Helpline: 0808 808 3555

Contact a Family provides advice, information and support to the parents of all disabled children - no matter what their disability or health condition. We also enable parents to get in contact with other families, both on a local and national basis. Each year we reach at least 275,000 families. Information on money for equipment etc.

KIDS

Web: www.kids.org.uk

Kids guides disabled children towards mainstream inclusion in their communities and give their parents respite, guidance and support.

Surestart

Web: What Surestart does

The Government's programme to deliver the best start in life for all children by education, childcare and family support.

Action for Children

Web: www.actionforchildren.org.uk

Formally known as NCH, Action for Children helps vulnerable children and young people in the UK. They offer:

Adoption services
Disability services
Supporting families
Education
Foster care services
Health and well being
Participation and children's rights
Residential services
Youth services

National Society for the Prevention of Cruelty to Children

Web: www.nspcc.org.uk

Run services for children, young people and their families including:

Childline
Support in schools
There4me website for young people
Therapeutic services

Childline

Web: www.childline.org.uk
Free confidential helpline: 0800 1111

Children's Society

Web: www.childrenssociety.org.uk

The children's society defends, safeguard and protect the childhood of all children. They have a network of children's centres and run initiatives in mentoring, participation and advocacy.

Barnados

Web: www.barnardos.org.uk

Barnodos services include counseling, fostering and adoptions, vocational training and disability inclusion groups.

The Children's Trust

Web: www.thechildrenstrust.org.uk

The Children's Trust services range from special education for children with profound and multiple learning disabilities to short breaks, transitional, palliative and long term care.

Kids Company

Web: www.kidsco.org.uk

Provide emotional, practical and educational support to vulnerable inner-city children and young people.

Dreams Come True Charity

Web: www.dctc.org.uk

Tel: 0800 018 6013

Makes dreams come true for young adults between 2 and 21 who are suffering from a serious or terminal illness.

Starlight Children's Foundation

Web: www.starlight.org.uk
Tel: 020 7262 2881

Starlight Children's Foundation aims to brighten the lives of seriously and terminally ill children (aged 4 - 18) by granting their wishes and providing hospital entertainment to help take their minds off the pain, fear and isolation oftheir illness.

Rays of Sunshine Children's Charity

Web: www.raysofsunshine.org.uk
Tel: 020 8782 1171

Rays of Sunshine Children's Charity exists to grant the wishes of terminally and seriously ill children between the ages of 3-18 who live in the United Kingdom.

Promise Dreams

Web: www.promisedreams.co.uk
Tel: 01902 378 595

This charity raises money for children (0-18) who are seriously or terminally ill and provide treatment, help and support for both them and their families. Whether the child would like a holiday, a toy, medical treatment or equipment, or even the chance to meet their favourite celebrity, Promise Dreams is dedicated and committed to help.

Round Table Children's Wish

Web: www.rtcw.org

Tel: 01202 514 515

Grants wishes to children under the age of eighteen. The aim is to fulfil a child's secret dream whether it is to meet their own heroes and idols from the worlds of sport, television and popular music, or perhaps to give them the opportunity to swim with dolphins, have a ride in a sports car or even make a parachute jump. For others, a quiet holiday with family members or the gift of a computer or playhouse may be their ideal wish.

Make-A-Wish

Web: www.make-a-wish.org.uk
Tel: 01276 40 50 60

Make-A-Wish grants magical wishes to children and young people fighting life-threatening illnesses.

When You Wish Upon a Star

Web: www.whenyouwishuponastar.org.uk
Tel: 0115 9791720

When You Wish Upon a Star aims to grant the wishes of children aged 2-16 who are suffering from a life-threatening illness.

WillowFoundation

Web: www.willowfoundation.org.uk Tel: 01707 259777

The Willow Foundation will organise and fund special days within the U.K. for seriously ill young adults between the ages of 16 and 40.

Afraid for Kids

Web: Afraid for kids

A book for children “at-risk” for Huntington’s disease

Hopes for Kids

Web: www.stanford.edu/group/hopes/

Talking to Kids book by Bonnie Hennig

Web: www.talkingtokidsabouthd.com

Information about Bonnie Hennig's book 'Talking to Children about HD'.

Connexions

Web: www.connexions.gov.uk

Confidential advice, support and information for 13-19 year olds on a range of topics such as health, money and relationships.

Winston's Wish

Web: www.winstonswish.org.uk
Tel: 08452 030405

Winston's Wish helps children rebuild their lives after the death of a parent or sibling, enabling them to face the future with hope. They offer practical support and guidance to families, professionals and anyone concerned about a grieving child.