HD research organisations

CHDI foundation

What is the CHDI Foundation?

CHDI is a private, not-for-profit research organisation. We work with an international network of scientists to discover drugs that slow the progression or delay the onset of Huntington's disease (HD).

We seek to accelerate scientific progress by serving as a collaborative enabler. We encourage and support cooperation and collaboration among HD researchers. Our strategy is to encourage researchers to develop practical ideas, useful research materials, and powerful technologies, often by providing financial support.

Our activities extend from exploratory biology to the identification and validation of therapeutic targets, and from drug discovery and development to clinical studies and trials.

You can find out more on the CHDI Foundation webpage…

European Huntington's Disease Network (EHDN)

What is the European HD Network?

• The European HD Network should provide a platform for professionals and people affected by Huntington's disease and their relatives to facilitate working together throughout Europe
• The European HD Network should facilitate natural history studies and interventional trials meeting high standards ('Good Clinical Practice' = GCP) thus helping on the road towards a cure of HD
• The European HD Network should be a true network in that all participants involved can take a lead and propose, conduct and publish studies

What does the European HD Network provide?

• An infrastructure for large scale clinical trials on Huntington's disease throughout Europe (database, IT-tools, monitoring personal etc.)
• An IT platform for communication tools (in the respective native languages) and e-trials
• A forum for close cooperation of basic scientists and clinicians
• Low threshold (native language!) support for study sites by language group coordinators