JHD Events

JHD Family Weekends 2011 and 2012

Our seventh JHD Family Weekend was held at the Calvert Trust in the Lake District again from the 3rd – 5th June 2011, and was as successful as previous years. We had quite a few new families come for the first time this year, and so it was great to welcome them, as well as seeing all the families who have been before. This year was the biggest year we’ve held so far, as the Calvert Trust now has more space on site, so it was also great to be able to offer the weekend to more people.

The Calvert Trust has some great activities, including horse-riding, canoeing, sailing, archery, swimming and rock climbing, so there is something for everyone and for every type of weather! They have opened a new swimming pool this year, which has lots of special additions – it was really enjoyed by those who went in!

As is now becoming tradition, we had a themed party on the Saturday night – Bollywood! For those who wanted to, everyone was able to dress up in various things, very kindly provided by one of the families that comes to the weekend. Everyone looked great! We were even treated to some fantastic Indian music and drumming – thanks again to the same family - which even got lots of us up and dancing! A memorable evening!

The purpose of the weekend is to give young people with HD and their families an opportunity to meet other people in a similar situation, whilst also having a great weekend full of exciting activities! The weekend is also an opportunity for families to find out more about JHD, both from other parents and professionals.

This year the weekend will be held from the 8th-10th June 2012. Please let Helen Santini, Roald Dahl Care Adviser for Juvenile Huntington’s Disease, know if you are interested in coming or want to know more about the weekend (Tel: 01279 507656 or email helen.santini@hda.org.uk).

JHD Study Days

We held a practical study day on Juvenile Huntington's disease on the 16th January 2008 in central London, aimed at health and social care professionals who may be supporting a child, or children, with JHD and their families. If you missed this event and would be interested in other professional study days, please visit our Events Calendar to find out about other events in your area. The HD Certificated Course for Professionals includes a session on Juvenile Huntington's Disease as well as other sessions of use and interest to professionals caring for someone with JHD.