Fact sheets, booklets & forms
The HDA Fact Sheets are available for viewing, printing and downloading online. You can also obtain printed copies of these fact sheets by contacting:
Huntington's Disease Association
Suite 24, Liverpool Science Park, Innovation Centre 1, 131 Mount Pleasant, Liverpool, L3 5TF
Phone: 0151 331 5444
Fax: 0151 331 5441
Email: info@hda.org.uk
Fact sheets about Huntington's disease
- General Information About Huntington's Disease and the HDA
- Predictive Testing for Huntington's Disease
- HD Information for Young Adults
- Talking to Children About Huntington's Disease
- Information for Teenagers
- Eating and Swallowing Difficulties
- Huntington's Disease and Diet
- The Importance of Dental Care
- Communications Skills
- Behavioural Problems
- Sexual Problems
- Huntington's Disease and the Law
- Huntington's Disease and Driving
- Advice on Life Assurance, Pensions, Mortgages, etc
- Seating, Equipment and Adaptations
- Checklist for Choosing a Care Home
- Advance Decision to Refuse Treatment
- Advance Decision to Refuse Treatment Form
- Huntington's Disease - A Carer's Guide
Members may also find Insurance and Genetic Tests: What you need to know on the Association of British Insurers web site useful.
Other publications
- Curse in Verse (on Amazon) - Poems about HD
Fact sheets about Juvenile HD
- Challenging Behaviour in Juvenile HD
- A Young Person with Juvenile HD at School
- A Brief Guide to Juvenile HD for Children's Hospices and Palliative Care Services
Fact sheets for social and healthcare professionals
Aimed at social and healthcare professionals and useful for anybody caring for someone with HD
HDA membership forms
HDA donation & legacy forms
- Bankers Order Form - make your donation to the HDA go further
- Gift Aid Form - if you are a UK tax payer we may claim Gift Aid on all of your donations to the HDA. We can claim an extra 28p per £1 donated from HM Revenue & Customs.
- Legacy Codicil Form
- Legacy Estate Checklist
- Legacy Giving Form
- Memoriam Donations
Healthcare professionals: Guides & fact sheets
Information for GPs
- Predictive Testing for Huntington's Disease
- Standards of Care for People Affected with HD
- Physician's Guide to the Management of HD
Nursing information
Physiotherapy & occupational therapy information
- Occupational Therapy
- Physical Therapy Intervention for People with HD
- Physical and Occupational Therapy for HD
- The Role of the Physiotherapist in HD
- Seating, Equipment and Adaptations
- European HD Network Physiotherapy Guidance Notes
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