Fact sheets, booklets & forms

The HDA Fact Sheets are available for viewing, printing and downloading online. You can also obtain printed copies of these fact sheets by contacting:

Huntington's Disease Association

Suite 24, Liverpool Science Park, Innovation Centre 1, 131 Mount Pleasant, Liverpool, L3 5TF
Phone: 0151 331 5444
Fax: 0151 331 5441
Email: info@hda.org.uk

Fact sheets about Huntington's disease

• General Information About Huntington's Disease and the HDA
• Predictive Testing for Huntington's Disease
• HD Information for Young Adults
• Talking to Children About Huntington's Disease
• Information for Teenagers
• Eating and Swallowing Difficulties
• Huntington's Disease and Diet
• The Importance of Dental Care
• Communications Skills
• Behavioural Problems
• Sexual Problems
• Huntington's Disease and the Law
• Huntington's Disease and Driving
• Advice on Life Assurance, Pensions, Mortgages, etc
• Seating, Equipment and Adaptations
• Checklist for Choosing a Care Home
• Advance Decision to Refuse Treatment
• Advance Decision to Refuse Treatment Form
• Huntington's Disease - A Carer's Guide

Members may also find Insurance and Genetic Tests: What you need to know on the Association of British Insurers web site useful.

Other publications

• Curse in Verse (on Amazon) - Poems about HD

Fact sheets about Juvenile HD

• Challenging Behaviour in Juvenile HD
• A Young Person with Juvenile HD at School
• A Brief Guide to Juvenile HD for Children's Hospices and Palliative Care Services

Fact sheets for social and healthcare professionals

• Standards of Care for People Affected with HD

Aimed at social and healthcare professionals and useful for anybody caring for someone with HD

HDA membership forms

• HDA Membership Form
• HDA Professional Membership Form
• HDA Change of Address Form

HDA donation & legacy forms

• Bankers Order Form - make your donation to the HDA go further
• Gift Aid Form - if you are a UK tax payer we may claim Gift Aid on all of your donations to the HDA. We can claim an extra 28p per £1 donated from HM Revenue & Customs.
• Legacy Codicil Form
• Legacy Estate Checklist
• Legacy Giving Form
• Memoriam Donations

Healthcare professionals: Guides & fact sheets

Information for GPs

• Predictive Testing for Huntington's Disease
• Standards of Care for People Affected with HD
• Physician's Guide to the Management of HD

Nursing information

• Standards of Care for People Affected with HD
• The Nursing Management of HD

Physiotherapy & occupational therapy information

• Occupational Therapy
• Physical Therapy Intervention for People with HD
• Physical and Occupational Therapy for HD
• The Role of the Physiotherapist in HD
• Seating, Equipment and Adaptations
• European HD Network Physiotherapy Guidance Notes

Diet information

• Eating and Swallowing Difficulties
• Huntington's Disease and Diet
• The Importance of Dental Care
• Communications Skills
• Malnutrition and Eating Difficulties
• Standards of Care for People Affected with HD
• Physician's Guide to the Management of HD (salt & dietician sections)