Fact sheets, booklets & forms

The HDA Fact Sheets are available for viewing, printing and downloading online. You can also obtain printed copies of these fact sheets by contacting:

Huntington's Disease Association

Suite 24, Liverpool Science Park, Innovation Centre 1, 131 Mount Pleasant, Liverpool, L3 5TF
Phone: 0151 331 5444
Fax: 0151 331 5441
Email: info@hda.org.uk

Factsheets

HD

• A Carer's Guide
• A Young Adult's Guide to HD
• Advanced Decision to Refuse Treatment (ADRT)
• Advice on Life Assurance, Pensions & Mortgages etc
• Advice on Seating Equipment & Adaptations
• Behavioural Problems
• Choosing a Care Home
• Communication Skills
• Eating and Swallowing Difficulties
• General Information about HD & the HDA
• Huntington's Disease & Diet
• Huntington's Disease & Driving
• Huntington's Disease & the Law
• Information for Teenagers on HD
• Predictive Testing for HD
• Seating, Equipment and Adaptations
• Sexual Problems and HD
• Talking to Children about HD
• The Importance of Dental Care in HD

JHD

• Challenging Behaviour in Juvenile HD
• Juvenile HD at School

Other Languages

Bengali

• Behavioural Problems
• Communication Skills
• General Information
• Predictive Testing for Huntington's Disease

Polish

• Behavioural Problems
• Communication Skills
• General Information
• Predictive Testing for Huntington's Disease

Punjabi

• Behavioural Problems
• Communication Skills
• General Information
• Predictive Testing for Huntington's Disease

Urdu

• Behavioural Problems
• Communication Skills
• General Information
• Predictive Testing for Huntington's Disease

Professionals

• Huntington's Disease - Doctor's Guide
• Huntington's Disease - Nursing Guide
• Huntington's Disease - SALT & Dietitian Guide
• Huntington's Disease Care Pathway
• Malnutrition and eating difficulties
• Occupational Therapy in HD
• Physical Therapy and HD
• Physical and Occupational Therapy for Huntington's Disease
• The role of the physiotherapist in Huntington’s disease

Forms

• HDA Change Of Address
• HDA Christmas Card Order Form
• HDA Membership For Professionals
• HDA Membership Form
• HDA Order Form

Fundraising

• Donating In Memory
• Fundraising Registration Form
• Gift Aid Form
• Legacy Giving Codicil Form
• Legacy Giving Estate Checklist
• Legacy Giving Pledge Form
• Standing Order Donation Form
• Volunteer Cheering Squad Form

Maps

• Branches & Support Groups
• Regional Care Advisers
• Worldwide support

Newsletters

• HDA Newsletter 2008 Summer.pdf
• HDA Newsletter 2008 Winter.pdf
• HDA Newsletter 2009 Summer.pdf
• HDA Newsletter 2009 Winter.pdf
• HDA Newsletter 2010 Summer.pdf
• HDA Newsletter 2010 Winter.pdf
• HDA Newsletter 2011 Summer.pdf
• HDA Newsletter 2011 Winter.pdf
• HDA Newsletter 2012 Summer.pdf
• HDA Newsletter 2012 Winter.pdf

Members may also find Insurance and Genetic Tests: What you need to know on the Association of British Insurers web site useful.