HDA: Fact sheets, booklets & forms

The HDA Fact Sheets are available online in PDF format. To download, view and print out the HDA Fact Sheets you will require a copy of Adobe Acrobat Reader on your computer. You can also obtain printed copies of these fact sheets by contacting:

Huntington's Disease Association

Suite 24, Liverpool Science Park, Innovation Centre 1, 131 Mount Pleasant, Liverpool, L3 5TF
Phone: 0151 331 5444
Fax: 0151 331 5441
email: info@hda.org.uk

Fact sheets about Huntington's disease

	General Information About Huntington's Disease and the HDA
	Predictive Testing for Huntington's Disease
	HD Information for Young Adults
	Talking to Children About Huntington's Disease
	Information for Teenagers
	Eating and Swallowing Difficulties
	Huntington's Disease and Diet
	The Importance of Dental Care
	Communications Skills
	Behavioural Problems
	Sexual Problems
	Huntington's Disease and the Law
	Huntington's Disease and Driving
	Advice on Life Assurance, Pensions, Mortgages, etc*
	Seating, Equipment and Adaptations
	Checklist for Choosing a Care Home
	Advance Decision to Refuse Treatment
	Advance Decision to Refuse Treatment Form
	Huntington's Disease - A Carer's Guide

* Members may find "Insurance and Genetic Tests: What you need to know" on the Association of British Insurers web site useful.

Other publications

Curse in Verse
Poems about HD

Fact sheets about Juvenile HD

	Challenging Behaviour in Juvenile HD
	A Young Person with Juvenile HD at School
	A Brief Guide to Juvenile HD for Children's Hospices and Palliative Care Services

Fact sheets for social and healthcare professionals

Standards of Care for People Affected with HD
Aimed at social and healthcare professionals and useful for anybody caring for someone with HD

HDA membership forms

	HDA Membership Form
	HDA Professional Membership Form
	HDA Change of Address Form

HDA donation & legacy forms

	Bankers Order Form - make your donation to the HDA go further - click here to download
	Gift Aid Form - if you are a UK tax payer we may claim Gift Aid on all of your donations to the HDA. We can claim an extra 28p per £1 donated from HM Revenue & Customs - click here to download
	Legacy Codicil Form - click here to download
	Legacy Estate Checklist - click here to download
	Legacy Giving Form - click here to download
	Memoriam Donations - click here to download

HDA maps

	HDA Branches & Support Groups
	HDA Regional Care Advisers

Healthcare professionals: Guides & fact sheets

Information for GPs

	Predictive Testing for Huntington's Disease
	Standards of Care for People Affected with HD
	Physician's Guide to the Management of HD

Nursing information

	Standards of Care for People Affected with HD
	The Nursing Management of HD

Physiotherapy & occupational therapy information

	Occupational Therapy
	Physical Therapy Intervention for People with HD
	Physical and Occupational Therapy for HD
	The Role of the Physiotherapist in HD
	Seating, Equipment and Adaptations
	European HD Network Physiotherapy Guidance Notes

Diet information

	Eating and Swallowing Difficulties
	Huntington's Disease and Diet
	The Importance of Dental Care
	Communications Skills
	Malnutrition and Eating Difficulties
	Standards of Care for People Affected with HD
	Physician's Guide to the Management of HD (salt & dietician sections)

In this section

See also