Resources for use with children

You may want to have some age appropriate information that you can use to talk to your children, the young people’s section of this website has information for (and created by) children and young people with HD in the family. There are other resources that you might find useful:

On-line information

Books you can buy

  • AFRAID – A book for children at risk for Huntington’s Disease.
  • Huntington’s Disease in the family – A Booklet for young children. This can be ordered from at a small cost from the HDA Head Office.
  • Huntington’s and Me – A guide for young people – This book can be ordered from the HDA head office at a small cost.

To order these books or other guides contact Head Office on 0151 331 5444 or email us at info@hda.org.uk.

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